Rinsho Shinkeigaku (Clinical Neurology)

Committee Report

Issues of transition support to adulthood and the practices of pediatric-adult healthcare transition in neurological diseases

Katsuhisa Ogata, M.D., Ph.D.1), Yoko Mochizuki, M.D., Ph.D.2), Satoko Kumada, M.D., Ph.D.3), Sunao Tomita, M.D.4), Yoshio Sakiyama, M.D., Ph.D.5), Kenjiro Kikuchi, M.D., Ph.D.6), Mika Hayakawa, M.D.7), Miho Osako, M.D., Ph.D., M.P.H.2), Toshio Saito, M.D., Ph.D.8), Hideki Mochizuki, M.D., Ph.D.9), the Special Committee on Measures for Transition from Pediatric to Adult Health Care, the Japanese Society of Neurology, the Special Committee for Transition from Pediatric to Adult Health Care, the Japanese Society of Medical Networking for Intractable Diseases

1) Department of Neurology/Institute of Clinical Research, National Hospital Organization Higashisaitama National Hospital
2) Department of Neurology, Tokyo Metropolitan Kita Medical and Rehabilitation Center for the Disabled
3) Department of Neuropediatrics, Tokyo Metropolitan Neurological Hospital
4) Department of Home Care Medicine, Tokyo Metropolitan Children’s Medical Center
5) Department of Neurology, Jichi Medical University, Saitama Medical Center
6) Division of Neurology, Saitama Children’s Medical Center
7) Department of Pediatrics, Tokyo Metropolitan Kita Medical and Rehabilitation Center for the Disabled
8) Division of Child Neurology, Department of Neurology, National Hospital Organization Osaka Toneyama Medical Center
9) Department of Neurology, Osaka University Graduate School of Medicine

A workshop of the Special Committee on Measures for Transition from Pediatric to Adult Health Care, the Japanese Society of Neurology was held to discuss various issues and practices involved in healthcare transition. The following points were addressed: (1) the history of, and issues involved in, promoting support for patients requiring medical care, (2) cooperation between pediatric medical centers and university hospitals, (3) collaboration between pediatrics and neurology in medical and rehabilitation facilities, and (4) a questionnaire survey of members of the Japanese Society of Neurology. The reasons for extreme difficulties in pediatric-adult healthcare transition for patients with neurological diseases, especially those who require continuous intensive medical care over a long period of time, include the difference in the operating systems of pediatric and adult departments, in addition to the difference in the diseases treated during childhood and adulthood. For holistic transition support, it is necessary to strengthen cooperation not only among medical professionals, but also among multiple professions, as well as between local communities and government.
Full Text of this Article in PDF (307K)

(CLINICA NEUROL, 64: 460−464, 2024)
key words: pediatric to adult healthcare transition, supporting the healthcare transition, Japanese Society of Neurology, the Japanese Society of Child Neurology, the Japanese Society of Medical Networking for Intractable Diseases

(Received: 20-Feb-24)