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  会員専用

• ホーム
• 52巻11号
• 臨床神経, 52：869−873, 2012
• 52巻11号目次

＜教育講演（2）―5＞

進行性筋萎縮症の診療のポイント
―困るのは動けないことだけですか―

小牧　宏文

独立行政法人国立精神・神経医療研究センター病院小児神経診療部，筋疾患センター〔〒187―8551 東京都小平市小川東町4―1―1〕

Progressive muscular dystrophy presents with various complications as the disease progresses, besides decreased motor function. It is critical to make an appropriate and accurate diagnosis and to provide appropriate multidisciplinary medical care continuously from the time of diagnosis, including pharmacotherapy, rehabilitation, orthopedic treatment, respiratory/cardiovascular care, nutritional support and psycho-social care. This will contribute significantly not only to the survival prognosis, but also to improvement of the quality of life of these patients. A comprehensive and proactive posture (result-oriented assessment and coping) toward those therapeutic approaches is important in clinical practice. This concept is common to other rare diseases and neurological intractable diseases and may be applicable to these diseases.
Full Text of this Article in Japanese PDF (643K)

(臨床神経, 52：869−873, 2012)
key words：筋ジストロフィー，デュシェンヌ型筋ジストロフィー，包括的ケア

（受付日：2012年5月24日）