Rinsho Shinkeigaku (Clinical Neurology)

Committee Report

Questionnaire for Kinki area Japanese Society of Neurology board members regarding transitional medicine for neurological disease patients

Toshio Saito, M.D., Ph.D.1), Toru Koda, M.D., Ph.D.2), Tatsusada Okuno, M.D., Ph.D.2), Akio Ikeda, M.D., Ph.D., F.A.C.N.S.3), Hideki Mochizuki, M.D., Ph.D.2)4) and The Special Committee for Measures Against Transition from Pediatric to Adult Health Care, Japanese Society of Neurology

1) Division of Child Neurology, Department of Neurology, National Hospital Organization Osaka Toneyama Medical Center
2) Department of Neurology, Osaka University Graduate School of Medicine
3) Department of Epilepsy, Movement Disorders and Physiology, Kyoto University Graduate School of Medicine
4) President of Japanese Society of Neurology Kinki Branch

In July 2020, The Special Committee for Measures Against Transition from Pediatric to Adult Health Care of the Japanese Society of Neurology was established to address transitional care for patients with childhood-onset neurological disorders. One of the measures used was a questionnaire regarding transitional medicine given to the 129 board members in the Kinki area. Of the 46 respondents, 42 answered that they would ggenerally examine such patientsh or gjudge on a case-by-case basish for patients referred from a pediatric physician. Most of the responses noted gepilepsyh and gneuromuscular diseaseh as target conditions. Generally, doctors in an adult medical department do not form a relationship with the patient or their family members, different than pediatric department doctors. Furthermore, adult clinical departments typically do not have sufficient knowledge regarding treatment of diseases such as developmental disorders. The present support system for transitional medicine is not sufficient and there is no means for reimbursement. Several issues must be resolved to facilitate a smooth medical transition.
Full Text of this Article in Japanese PDF (645K)

(CLINICA NEUROL, 63: 559|565, 2023)
key words: The Special Committee for Measures Against Transition from Pediatric to Adult Health Care, transitional medicine, childhood-onset disease, epilepsy, neuromuscular disease

(Received: 7-May-23)